Investment + Time = Seriously Futile?

I invest the precious little time I have at writing on computers, when I could think of a billion other things I could be doing like, spending time with my children or other people, resting, walking outside, doing back flips, housework, reading, listening to music, fencing, cooking / eating, getting out and about, whatever.

My point this blog is a duty, I don't have to keep updating it and pouring my heart out, it could be otherwise better spent.
I am a person just like you, with many responsibility's.
Keeping my blog updated is one of them.

It costs me time and energy.
Both of which I have VERY little of.

If you enjoy what you see please take 2 minutes or so, (there is an initial exchange of your detail's needed in order to join but that's only once), out to leave me a comment instead of investing your precious time on facebook or youtube. (or another social networking sight)

Let me know I'm not wasting time.

Holiday!... Celebrate!...

I left for vacation on Tuesday (15.9.09) for 10 days with my 2 children and my sister.


And my good friend Claudio Kirac helped me buy an Apple MacBook Pro.

I plan to sit by the pool with a fluffy duck in one hand, rainbow pinstripe speedo’s on working on the tan and new macbook in the other hand. Not actually working. Just posing.
(tumbleweed roll’s past as you grasp that picture)


I am feeling overwhelmed and guilty but I guess that is to be expected as I am not used to people doing selfless things to help me.

I was that guy that would hold open doors for people with a smile. At a school that I went to in England in the early 90’s, I was new, I wanted to ‘blend in’ and impress, so I became 'that guy' that held the door open into the main school building after morning chapel. What i thought was 6 – 12 people tuned out to be around 200 people. I awkwardly smiled for so long that I got a mouth twitch. (my chivalry lasted a week).
I am fiercely independent.

The flight is just another long haul to me, (as I went to school in the u.k. for a few years and have also travelled extensively), but it’s a big thing for the children who have flown to Fiji before but that isn’t a long haul from Australia.

They loved the whole experience, stuff that the travel hardened find monotonous, check in, customs, transit lounges, dad in a wheelchair, take off, air safety, compact toilets with a loud flush, personal tv screens, air conditioning, reading lights, turbulence, descent and landing.
I can take it or leave it.
Not to sound spoilt but I’m a nervous flyer. The faintest sniff of clouds or turbulence and I find I’m grabbing my armrests to control the plane.

This was a last minute thing it’s unbelievable, thankyou for the selfless donations. They help to make normality possible.
Without them I would only have income protection insurance as my sole income, it is miniscule and doesn’t allow any room for luxury’s at all.

So this is part when I ask you to please not forget to donate.

E` Voila!

Here is a newspaper article published is The Gold Coast Bulletin July 18 - 19 2009 by reporter Alice Gorman.
I'm not tech savvy enough to upload it to my site, my very good friend Claudio Kirac helped me. Enjoy and feel free to comment A LOT of behind the scenes work went into this.

Information.

For those new to this.
Thank You for taking the time to read my updates, please check it often I update it weekly. (sometimes every few days).
My condition causes me to fatigue from talking, so writing is a bit easier for me.
You might want to read the updates from the archives to gain knowledge on what has happened so far.
In particular: 17.11.08 & 25.11.08

p

Mermaid Styles. part 2.

Then onto a music shop that I found had relocated, as I walked I reminisced about the area, in the next street was a local surfboard shaper whose boards I used to ride.
“Hydro Cool”.
The head shaper Robert Morley really knew his craft, a blend of math and hand – eye sculpting.
That’s only the shaping of the foam blank there is so much involved in making a surfboard that the general populace don’t know about. And it’s dangerous, working with toxic materials and chemicals.
I did a work experience stint here during 12th grade. I loved it.


Next stop on my adventure was a friend’s store “Sneak & Destroy”.

I was in a mirage sanctuary after my leisurely stroll in black jeans, long shirt and heavy back pack.

I was greeted by my friend ‘duck’, rare skateboard decks, toys as in Transformers, He – Man and Star Wars figurines, various Kid Robot’s, sneakers (of course), clothes, hats, good music and Smurf wallpaper.

I love collections stores.

We had a bight to eat and a catch up on things and another mutual friend Cam Wilson dropped by who also has a musical project called “The Daisy cutters”.
When I say ‘also’ I mean duck as one of his many hats is in the independent music scene, started a band “The Julian Date” around the time I was in my 1st band “Mustard Seed”, (we primarily met through that back in the day), also has a few other musical projects on the go presently with “The Greys” along with some other goodies on the DL that I wont disclose yet.

Conversing, I subtly perused and salivated at the thought of treating myself.
I gave in.

When I was living in Milan I used to justify buying fresh kicks for myself by musing to myself that I deserved it due to working on my feet all day, walking long distance on cobblestone streets in random places I would visit and they looked good too.
Essential accessories.

Only to be totally thrashed.
More self justification.

Back to where I was, “Sneak & Destroy”. (education; there was a saying made famous through the late 1980’s by powell perelta’s bone’s brigade, “skate & destroy”)

I said goodbye to duck with a pair of box fresh kicks and a T.

Ruling.

www.sneakanddestroy.com

The next part of my adventure is my Limo, (taxi), ride to my Aunts.

Mermaid Styles. part 1.

I went for a long slow walk the other day, I tried to blend in but it the sun was unseasonably blazing and I was dressed for a fresh spring day with my heavy backpack , I was getting a sweat moustache as I negated the back streets of the GC’s Mermaid Beach.
My tour went for about 1 km, (not only good for my stamina), from a Physio Therapy appointment past where the old pool hall used to be where we would ride our push bikes or skateboards to and hang out.
To very cool gallery that opened as I got sick and several friends had they’re work exhibited there and told me about.
I had not had the chance to visit this art space for myself and soak it up.
I used to use Base as a way to expose my friend’s art but our main thing was doing hair and we wanted our customers to feel relaxed and at home so we wouldn’t overload them with culture.
Just tease and give people a taste of the depth of the local talent that some people think is dormant here.
On a few occasions we would make Base as bare as possible and turn it into an art gallery and get 300 people in our small boutique.

Props to Mariam and the 19 Karen Avenue space!
I couldn’t work there and save money, just too many good pieces.
Definitely worth a look.
www.19karen.com.
(but check it in the flesh, realism, we don't do enough)!

Festivus!

It’s a time of year that consumes my memory.

Most importantly starting with my birthday, then the mother of my children’s, my mothers, my aunts and my sisters.


Yesterday was my aunts 75th.
Auntie Dawn has been a 2nd mum to me.
The poor lady, trying to control me.

Some people collect stamps, or models, my aunt is a tele – market collector, you name it and she has either had it or has it.
She is rad.
I love her.


Today, (11th), is my sister Nicole’s birthday.
Nicole is older than me. Just.
But we both know that I like to think I am the bigger brother.

Nicole continues the family tradition of being active in the very selective athletic world of classical Ballet.
Always punching well above her weight.

And being a 2nd mum to my kids too.


Happy Birthday Nicole.
Love me.

Stamina.

Last week, (2.9.09), I had my umpteenth c.t. scan on my abdomen.
For those lucky enough not to have had the experience, it requires you to fast and be nil by mouth at least 3 hours before hand.

You can have fluids like water.
You are sometimes required to drink a thing called ‘contrast fluid’, (poison), it makes the part of your body being scanned illuminate to the scanner.
This fluid not only tastes wrong but it damages the kidneys so you have to flush it out afterwards by drinking lots of water.

I have had so many scans since April 08 I loathe it.
They are life saving procedures, but before I became ill in April last year, I assumed I may have a few scans when my body decided it had enough from old age, but now they are part of my everyday life.

The worst by far is a thing called the p.e.t scan. (like a really powerful m.r.i. scan that scans the entire body)
You fast for a few hours and are injected with nuclear sugar based dye and told to lye down in a very dark room for 30 – 40 minutes and then onto the p.e.t. scanner.

If my dysfunction doesn’t get me the radiation and the toxins will.


After that I went to see my treating Neurologist Dr. Williams, I had an m.r.i. scan of my brain about 2 months back, so I saw him about that and a few other things too.

I am on a medication called Gabapentin, like an anti - epileptic, although I am not epileptic in any way, it's one of the ways how my illness is treated. (ironic that i'm slow enough and the medication makes me even slower)

The plan is to gradually increase my dosage.
The side effect is super fatigue.
So when I would normally have energy to write I have been overcome by lethargy the past week.
It takes about 6 - 7 weeks for my body to get used to the dosage, 900 mg 3 times a day.

Dr. Williams also thought that there had been some deterioration in my cerebellum according to my last m.r.i. but the official test result hadn't come in.

That may be irrelevant if that is the case, as I still continue to adapt.

Investment + Time = Pointless?

I invest the precious little spare time I have at writing on computers, when I could think of a billion other things I could be doing like, spending time with my children or other people, resting, walking outside, back flips, housework, reading, listening to music, fencing, cooking / eating, getting out and about, whatever.
My point this blog is a duty, I don't have to keep updating it.
I am a person just like you, with many responsibility's.
Keeping my blog updated is one of them.

It costs me time and energy.
Both of which I have VERY little of.

If you enjoy what you see please take 2 minutes or so, (there is an initial exchange of your detail's needed in order to join but that's only once), out to leave me a comment instead of investing your precious time on facebook or youtube. (or another social networking sight)

Let me know I'm not wasting time.